Wednesday, May 2, 2012

The one where I say thank you

Today feels like it will be the least eventful day yet, though not for Asher.  Another EEG is on the schedule, as well as an MRI, which requires a parade of Asher's cords, tubes, and machinery through the hospital.  The former will get a post-test of Asher's neural activity after the hypothermia treatment.  Sedatives will still interfere with getting a pure reading, but we won't have the cooling pad confounding things.  The MRI will provide a picture of the brain and its structure.  It will also look for signs of a stroke prior to birth, though the neonatologist is not expecting this to be the case.  Damage from a stroke is typically localized in the brain.  It's believed Asher's "insult" caused more widespread damage.

A call to the NICU told us he's tolerating the warming well, with decreased seizure activity from yesterday.  He's also off of his blood pressure medication now, another positive.  He had seemed to be growing rapidly, which we really liked, but it turns out a lot of that was water he's retained.  He was given a diuretic, and I'm happy to report my son took a massive dump.  Four ounces.  For those of you scoring at home, that's a small hamburger in his pants.


For us, it seems there's little to do at the hospital other than the very important job of being and bonding with him.  We're both very excited to hold him again today.  We've spent another morning taking care of business at home like worrying about insurance and cleaning.  One order of business should be something that I don't feel has been done adequately, though that might be because of its impossibility.

Even before Asher's birth, we'd felt so much love and excitement coming in from the world around us.  When our feelings turned to shock, fear, and pain, I felt the world shake with us.

I work a lot of kids and families who've been through traumatic events.  There are three well accepted needs of a person in order to recover from an event like this: safety, mourning, and re-connection.  A person must re-establish a sense that they (and those they love) are safe; they must mentally process the event in their own way; and they must connect with the world around them.

As I watch myself and Marissa go through these stages, I'm struck by how critical others are in the process.  Amid the shock and horror of watching my child swarmed with doctors and nurses, intubated, and rushed to the NICU, I also felt as safe as a person reasonably could.  I mourned with Brad by my side in those first hours.  And I've reconnected with the world through your visits, texts, calls, Facebook messages, and the almost 8000 (!) views of my curiously long blog postings.

Keep clicking refresh everyone, it feels good.

There is no healing without you.  I do feel like we are coping as well as can be expected, and that is a direct reflection of the tsunami of love and support we've been washed in.  I would love to respond to each and everyone one of you individually, but you've been far too loving for that to be possible.  The tsunami has been too big.  Just know that we have read every one of your messages, listened to each voicemail, received every gift, and enjoyed every visit.  Each one has given us what we need most - hope.

From the bottom of my heart and soul, I say thank you, thank you, thank you a million times.


Thank you.



11 comments:

  1. Thank you for sharing so much of your personal experiences with the world. Its inspiring, hopeful, and very real. Asher has a huge fan club :) and so do you and Riss! I hope the next days bring good progress for your strong little guy. Thinking of you 3 all the time.

    Much Love,
    Lisa & Will

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  2. Marissa, Zach and Asher,
    I want you to know that we are rooting for you. Your story is heartbreaking and you both have shown such strong personas dealing with this. My wife and I look up to you as you deal with the wide variety of emotions. We are actively praying for Asher and have passed your story on to several prayer circles. We hope and pray for your famliy.

    With love from Seattle,
    Ian, Elena, and Evan Brown

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  3. Zach, I have a herd of people that have never met you or Ris, but already LOVE you and your precious family. They tune in nightly!
    Love you both, wish we could be there! The kids are TOTALLY in love with Asher and his videos... keep them coming. xoxoxoxoxoxo
    Love, Lisa

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  4. I'm echoing the post from Lisa and Will. We are all in this journey to parenthood with you. It's a journey full of surprises no matter how you enter it. You have a beautiful son and the three of you together look so complete. Best wishes to all.

    Carrie Myers (Lisa's mom)

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  5. Hello, my lovelies! Just to let you know we are taking operation Baby Asher very seriously in the Upstate, and we have three churches, and 50 ESOL students praying for you all. Every morning my kiddos are coming and the first thing they ask is "How is baby Asher, Mrs, Young?" One of my lovelies told me that they can't stop thinking about and praying for him. I am so overjoyed that you were able to hold him and make that connection. We love you and are still flooding the heavens. Love always, Auntie Kate and Uncle David

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  6. Dear Marissa, Zach, and Asher,

    My name is Beth--Marissa, you and I met briefly quite some time ago at a birthday celebration for Libby Struik--and while we may not be dear friends, I have stumbled upon this heartfelt blog and feel so very privileged to be reading your story. Though I cannot truly know how you are feeling, your words, photos, and videos have resonated deeply in my heart, and I would simply like to reflect back to you the abundance of love, gratitude, and strength you are sharing with this world and with your new family.

    Thank you for sharing your story and for articulating the beautiful depths of a loving partnership and parenthood. I look forward to each of your updates, and I add my voice to the loud chorus cheering you all on wildly. You're wonderful.

    Beth

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  7. Marissa, Zach & Asher,
    I am a friend of Katie Kemmerling and remember hanging out with Marissa back in the day. Your family has been in my thoughts and prayers before Asher's birth through FB updates, and continues to be through this difficult time. Your touching and personal blog is a testament to what amazing and strong people you both are. He is so blessed to have parents with such huge hearts. I check your blog and pray with each new update a baby-step forward is made in his progress.

    Sending you positive thoughts and heartfelt prayers,
    Meg (Altman) Brennan

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  8. I am listening an even though I don't know you I have become so interested in this babies well being

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  9. Zach and Marissa,
    You both are such amazing people. We are so sorry you've been faced with such a difficult situation and have been praying for you and Asher since he was born. I am so glad that you've gotten the opportunity to hold Asher and that there continue being reasons to for hope. Thank you for sharing your world with us.
    I know we don't see each other much these days, but I love you both so much and think of you often.
    Jake and I live about 2 minutes from Mission, so if you're ever stuck at the NICU and hungry for homemade chocolate chip cookies, I'm your girl ;) or dinner or beer or Mamacitas.. like I said, 2 minutes.

    Peace
    Jenni and Jake Southern

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    Replies
    1. Followed Corrie Kentner's post on FB...my husband Justin and I, along with our three daughters are praying for you all.

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  10. Zach, I have never met you (and truth be told only knew Marissa for a brief 3.5 months in Spain outside of social networking), and yet you move me so much with each post. Thank you for sharing; we (the good ol' collective we) hang on every word and are absolutely sincere in words of hope and emotion.

    You two are wonderful, and as lucky as you are to have Asher as your son, he is equally lucky (if not more) to have the two of you as loving parents.

    Stephanie

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